Message from Our President

I’ll never forget that morning in the hospital when the neurosurgeon’s physician’s assistant came in with tears in his eyes to tell us that the MRI Isabel had the previous day revealed a tumor wrapped around our baby’s spinal cord. That moment was the beginning of opening our eyes to what at that time we considered the obscure world of childhood cancer and developmental delays.

When Isabel began her treatment, we were terrified of what the days would bring. We didn’t know what to expect in terms of her side effects. We didn’t know that we would be cleaning up vomit among other things every night. We didn’t know our child would be so uncomfortable that at two years old, when most children are showing affection, she couldn’t stand for us to hug her sometimes. We didn’t know that we would be asked to use gloves when changing her diaper because her urine could be toxic to us. No parent could ever possibly be prepared for what we were about to face.

Over the years, we’ve watched children come and go through clinic tethered to their poles. We’ve seen the bewildered faces on parents who feel just the same as we did when we first began Isabel’s treatment. I’m not sure when it happened, but there came a moment where I grasped onto hope so tightly that what came to mind was to help others.

I want to not only take part in eradicating childhood cancer, but I want to help children and their families along the way. I want to help parents who feel lost know that it’s ok to be angry and frustrated, but that they’re not alone in the fight.

We’ve watched Isabel work harder in her three years of life than any one we know to recuperate and learn to how to walk and run. We want to make sure that children just like her have the resources and medical equipment available to them to ensure they reach their full potential.

This is why we started Izzy’s Infantry. We could not sit idly by while there was work to do not just for our Isabel, but for all children and families just like ours. Isabel’s fight is far from over, but her tenacity and strength inspires us every day and we hope to share that with the world.

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I might only have one match, but I can make an explosion.
— Rachel Platten